Another update

On Tuesday, we finally got to meet with Keo's doctor at Primary Childrens. They explained everything to us again and ran some more tests and talked about the treatment he would need. I feel so much better now that we have someone we can go to with questions and some one that knows something about this disorder. So they put him on some medication and I will supplement a little bit of a special formula into his diet. The major things happen when he gets sick or gets a fever and it's not taken care of. So we just have to keep a good eye on him and hopefully he will be okay. He does have to have blood tests done once a week for six months and next month they want to do an MRI to make sure he does not have any hemorraging or damage in his brain. He is such a strong boy though, he is doing very well so far and I am so thankful for that. We did have to get our other boys tested because this screening for GA 1 is fairly new and my other boys were probably not tested for it. Cross your fingers that they will be okay. I am very hopeful that they do not have it. Anyway we are doing good just taking it day by day, thanks again for all your messages. We love you all!